Privacy is extremely important to the Canadian Neuromuscular Disease Registry (CNDR).

The CNDR has developed this site as a resource for organizations and individuals wanting information about the registry. When you visit our website, our web server automatically collects a limited amount of information essential for the operation and security of our website. Some of this information (i.e. browser type) does not identify who you are, while other information, such as your Internet domain name or IP address, may identify you. The extent of personal identification depends, in a large part, on the "naming standards" followed by your Internet Service Provider. You may wish to inquire about their policies and practices in this regard.

Our website uses a software 'cookie' to remember your language preference for return visits to our site.

We do not collect personal information, such as your name, phone number, or email address, when you visit this site except if you deliberately provide it to us using our contact form. If you have provided information to us using our contact form, after the nature of your request or inquiry has been addressed, your information is deleted from our records.

Any personal information we do collect via our website is in compliance with Alberta and federal legislation regarding Privacy and Information Collection. Additionally we comply with the policies of the University of Calgary regarding information collection. We collect only what is necessary for the operation of our website and we use that information only for the purpose(s) for which it was collected. Further, we keep the information only for the length of time necessary to fulfill the purpose(s) for which it was collected. We do not disclose your information to anyone.

Should you choose to participate in the CNDR. Specific information on the data we collect and your privacy will be provided to you when we request your informed consent.

Although we make every effort to ensure that all information posted on our website is accurate and complete, we cannot guarantee its integrity. If there is any discrepancy between the information posted on our website and the original paper versions, the original paper document is authoritative.

This website contains links to other sites. We are not responsible for the content and the privacy policies of websites other than our own, and encourage you to examine each site's privacy policy and disclaimers and make your own decisions regarding the accuracy, reliability, and correctness of material and information found there.

If you have any questions regarding our privacy policy, please contact us.

A Note about Website Statistics: To help with website traffic management the CNDR may from time to time use a web statistics program to record general information regarding visits to the site, such as: time of the visit, pages used to enter and exit the site, country of origin, search terms used to find the site. These statistics are only used to review and revise the productivity of the Website. We do not track, share, or record any personal information in this process.