Medical data is pooled in a computer database with information obtained from other patients across Canada. This builds a picture of how people with neuromuscular diseases are affected over time and enables development of new treatments. This knowledge can be used in many ways:

• to help understand the burden these diseases create and direct resources to where they are needed most
• to increase understanding of diseases
• to enable new research studies and clinical trials
• to improve clinical care and disease management
• to improve the chances of finding a cure